Arms Around Adele

     ​​On August 8, 2011, at a prenatal doctor's visit at Little Company of Mary Hospital, an ultrasound revealed there was something blocking our unborn baby's intestines.  Her life was in danger and she needed to be delivered as soon as possible. In less than 48 hours our lives changed forever.  We were transferred from Little Company of Mary hospital to University of Chicago Medical Center.

     On August 9, 2011, Adele Elizabeth Higgins was born seven weeks premature and immediately rushed into surgery to remove a bowel obstruction resulting in an Ostomy (a surgically created opening connecting her small intestine to the surface of her body).  After five weeks another surgery was performed, an Ostomy Takedown (removal of small intestine from the outside of the body and reattaching it inside). Adele spent the first seven weeks of her life in the Neonatal ICU at U of C Medical Center.  After undergoing multiple tests it was determined that her liver and digestive system were not functioning properly.

     As the days went by our little angel was diagnosed with Cystic Fibrosis.  At the time we had no idea what the disease was or that it ran in both of our families.  Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide).  A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs leading to life-threatening lung infections.  It also obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.  With this diagnosis we realized that our lives would be different than we had anticipated.

Monetary Donations may be made at any Chase Bank location please make checks payable to:  Arms Around Adele.  

To Help Adele

     Adele receives chest percussion therapy up to four times a day.  She is on multiple medications and has countless trips each month to the pediatrician, Cystic Fibrosis clinic, liver specialist and dietician. Adele has been hospitalized multiple times due to complications from this disease.  She is a strong little fighter and always seems to have a smile on her face and a twinkle in her eye.  You would never guess that even the slightest sneeze could pose a new threat to her life.
   We are lucky that Adele was born in a time of ground breaking advancements in treating this disease.   New drugs for treating Cystic Fibrosis are being researched and some are now in the trial stage. While these drugs will help treat the disease they will NOT cure the disease.  One of Adele's medications projected cost is $300,000 per year.  Adele will have to take this and numerous other medications for the rest of her life.  She also requires costly medical equipment that will help keep her lungs clear and extend her life.  Our families have spent many anxious hours with Adele at the doctors' and hospital monitoring her health.   
     While our insurance helps it does not cover all costs.  These health challenges are ongoing - for example in April, 2013, Adele was admitted into the hospital 2 times with a virus/intestinal infection/blockage.  One of the antibiotics she needed cost $4,000.00 a month.  The insurance company did not cover the prescription costs.      We pray a cure is forthcoming in the near future but until then we will continue to do everything in our power to help our baby girl.  Adele is the most beautiful baby we have ever seen with red hair like her dad and blue eyes like her mom.  She had gone through more in the first few months of her life than most people could ever imagine and will continue experiencing these problems for the rest of her life.  Please help us in assuring that Adele’s medical needs will be met so that she can live as close to a  “normal”  life as long as possible.