Adele was born prematurely at 33 weeks with an intestinal blockage. Less than eight hours after entering the world, she underwent emergency surgery and was diagnosed with ileal atresia and meconium peritonitis. After her surgery, we believed we were finally on the path toward healing and bringing our baby girl home to begin our life together as a family.
But our journey took an unexpected turn.
When Adele was just 11 days old, we were told that she had Cystic Fibrosis. At the time, we knew very little about the condition—only that it was a lifelong, recessive genetic disorder. Adele remained in the hospital for seven weeks as we began learning what our new normal would look like. During that time, she also had to undergo a second surgery before she was finally able to come home.
Over the years, Adele has spent many nights in the hospital battling illnesses, undergoing procedures to monitor her health, and managing daily treatments and countless medications. Something as common as a cold can—and has—led to hospitalization.
Today, Adele is 14 years old, and we could not be more proud of her strength, courage, and resilience. She has faced more challenges in her fourteen years than many people experience in a lifetime, yet she continues to meet each day with a smile and incredible grace.
This website was created to help family and friends stay updated on Adele’s journey and to raise awareness about Cystic Fibrosis. We would not be where we are today without the love, encouragement, and unwavering support of our family and friends
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